PANDAS Flares: 10 Ways to Detect, Contain and Treat Whether PANDAS flares strike overnight or take a few days to make their presence known, it’s easy to panic when we don’t know how long the recurring symptoms will last, whether new symptoms will surface, or even what triggered this relapse. Often times dwelling on the unknowns escalates an already stressful situation, while focusing on […]

This blog post is intended to be an open message for all dads who help care for a child with PANS or PANDAS — beginning with this Rocky Balboa video.  So, did you identify with Rocky? Or, the punching bag?When I showed this video to my husband, I honestly could not stop laughing as […]

PANDAS Affects Siblings Too: Connecting Through Pain Until my older children angrily vocalized that life in our home was no cake walk for them either, I hadn’t realized the degree to which PANDAS affects siblings also. Siblings of children with PANS and PANDAS have their own story to tell about these pediatric autoimmune diseases—they are patients too. The brothers and sisters living […]

Don't Let PANDAS Cripple Your Marriage Raising a child with PANDAS can cripple a marriage–some marriages are even destroyed. Although my husband and I are working to rekindle our marriage after 12 years of upheaval associated with having a raging, aggressive and obstinate PANS child, I must admit that at one point I didn’t know if our marriage would survive. There […]

Guilt Be Gone: You Are Doing Your Best There is no room in motherhood for guilt. I’ll never forget when I first heard these prolific words. Aidan was two years old and burned his right palm on a clothes iron that I had placed on my nightstand – and turned my back on. Less then five seconds later, the damage was done. His […]

PANDAmonium: A Chaos Like No Other Welcome to PANDAmonium – my blog, that is, not the lives we lead as parents of children with PANS or PANDAS. Chances are that if you’ve found my blog, then you and I have a lot in common. We have seen our children suffer from ticks, OCD, anxiety, food pickiness, rages, aggression, depression and for […]